The Chronicles of Rhys

Rhys is our handsome, brave, and resilient 5 year old boy and we are asking for help to get him the specialised wheelchair he needs. Rhys...

So where are we now? School... Well, that's a new kettle of fish and I'm not going to sugar coat this because well that's not why I'm...

Rhys has this amazing ability to be happy and adapt to overcome challenges. He is robust and resilient and I could not be more proud!...

So there it is, after 4 and a half years of fighting his diagnosis it was finally written down in black and white! Congenital Myopathy!...

When we got in our Peds room it felt like my heart could jump out my chest, my mum was with me as Mark was at work and we sat down. I...

Rhys is now 4 we have spent the last year and a half doing the same appointment dance we have been doing a while, His fatigue is at an...

So at this point Rhys is about 6 months old and If I could go back and to 2017 Rhiannon I'd hand her the biggest bottle of wine i could...

Over the next 2 months I was able to bond much more with Rhys, the resentment was gone, the pain was gone and that we were all happy and...

I never saw myself creating a blog or sharing our story on a public platform so bare with me as it's been a long bumpy ride for us all...